I love writing about disability. I find the experience
fascinating, morally complex, a topic that demands constant imagination and
exploration. Yet, many of the challenges that face the disabled community are
not addressed with theory, or philosophical argumentation. Disabled language,
culture, and sharing collective experiences are important, but they don’t
readily shape our world, not really. Intellectual philosophizing is slow to bring about shifts in the larger
world. No, if you want to bring about substantive immediate change you have to
look to policy. I’ve talked about my butt, gender identity, death, coffee, and
the occasional revelation. Yet I’ve neglected a political event which has had
the most lasting impact on my life, and the lives of my disabled brothers and
sisters.
The Americans with
Disabilities Act upon its passage was one of the largest pieces of Civil Rights legislation in US history. Its protections have made every accomplishment of my
life possible. Without the ADA I would not have graduated High School, I would
not have met my wonderful friends at Drake University, I certainly would not be
an intern at Disability Rights Iowa. The ADA is in my job title after all.
Without the ADA, my entire life would have been profoundly diminished, reduced
by the extensive social, financial, and medical limitations of the pre-ADA
world. For the disabled community, the
ADA was nothing less than liberation. If that sounds dramatic, it is because it
was. With the signature of President George H.W. Bush, the disabled community went from being politically perceived as a fragmented social oddity to a protected
class, with rights cemented and inalienable. Our government, (the same
government that generations prior had committed us to hellish institutions,
castrated us, denied us our basic human rights) had finally acknowledged the
vulnerability of the disabled population to discrimination. It affirmed our
immeasurable value should we be allowed to become a full participants in
American society, and sought to bring about that full participation. The ADA
was radical, expansive, and almost…idealistic. Reading it, you can’t help but
appreciate that its authors were attempting nothing less than the total removal
of the socially constructed constraints imposed on the disabled community. Its
titles address everything from employment to educational access, curb cuts to
captioning, many of the greatest challenges of the disabled community
acknowledged and addressed. It is staggering in its scope and audacity.
Title I of the ADA deals with employment. Its basic premise
is that people with disabilities deserve equal access to job opportunities,
accommodation, and long term career success. It attests that with slight
modification we can be full, valuable workers in every walk of life. Its
protections are clear and essential. The disabled have the right to
accommodation in the application process, the interview, and as an employee. The
title protects us from discriminatory hiring policies, and mandates that employers
must allow equal access to opportunities for which we qualify, to accommodate
our needs (within reason) and create an environment in which we have the
ability to show our full ability. Provided we are capable of fulfilling the
essential elements of the job, our employers must, with a few caveats, provide the
accommodations which make our work possible.
Title II opened the doors of government, allowing the
disabled community equal access to the services of the state, services so often
essential for our independence and well being. We pay taxes and contribute
greatly to this county, voicing our unique perspective in every dimension of
life. Our status as full American
citizens demands that our government rises to meet our unique needs. In its simplest
form, Title II mandates that the programs and services of government be extended
to all people, regardless of disability. Perhaps most importantly, it requires
that city transportation be accessible. The ability to get out into our
communities, and engage fully as members of society is essential. This element
finally released millions of disabled Americans imprisoned by their lack of accessible
transportation.
Title III established the principle of Universal Design, the
policy that all private businesses must accommodate the disabled community
within their capability to do so, and that all future renovations and
constructions must be done with an eye towards accessibility. Common decency
and a respect for human dignity demand accessible design. Title III simply
makes this moral obligation law, and its extensive regulations establish clear
guidelines for ensuring that access. Businesses must be accessible, and those who
are able to make the necessary changes to accommodate disabled patrons must do
so with expediency. The extent of the
ADA is vast, and I’ve only just touched on its three main pillars. There are
sections on closed captioning, retaliation, and a large collection of
miscellaneous issues. It truly is a substantial legislative work, and I
couldn’t hope to do it justice here. Just familiarizing oneself with its major
provisions is daunting.
It was a privilege then to spend last week in San Antonio,
at the ADA Symposium. I’m a political science major, a West Wing fan, someone
who ravenously consumes every piece of information I can about disability
rights and advocacy. So to spend a week in beautiful San Antonio, discussing
and learning about the endless facets of the ADA was a dream. I toured the River
Walk and discussed its accessibility issues, learned about ADA case law, spent
my days studying the extensive requirements established in the ADA, and spent my
nights sipping Cervezas as mariachi music echoed off the water. I truly suffer
for the cause.
The Symposium was important to me
because I have such a strong feeling of obligation to fully understand the ADA,
to appreciate the many ways it protects my rights as an American citizen. This
sense of obligation is partially to protect my own rights, but mostly a desire
to arm myself to better help my fellow disabled Americans. The Symposium was
the perfect place for me to learn, to explore, and to come to realize just how
far I have to go when it comes to fully understanding the scope of the ADA.
There are so many parts to understanding a law. You have to understand what the
legislation requires of course, that goes without saying. Yet, the ADA itself
is less the building then the beams. Any legislation is just a beginning; it
needs enforcement, legal interpretation by the courts to refine its meaning,
endless statements of clarification. Laws are living documents, requiring collective
interpretation, and revision in response to that interpretation. They require
diligent, passionate people dedicated to seeing its principles become a
reality. The ADA has been amended several times, amended to defend an
inclusive, wide interpretation of disability so essential to its function.
Understanding
the ADA is not so much a goal, as a never-ending process, one in which I’ll be
engaged in the rest of my life. I am
thankful for the ADA, for all its flaws, despite its many failures to fully
bring about the changes it mandates. I love it’s obvious ambition, its sentiment,
it’s very purpose. At its core, the ADA it is a statement by my government
acknowledging my worth as a disabled American, and giving my right to full
participation the force of law. As has been said by Senator Harkin many times, the ADA is an Emancipation Proclamation for millions of disabled Americans. Still,
it is an Emancipation which demands our full dedication to its principles, our
continued efforts as a society to see it as a promise fulfilled. All those here
at Disability Rights Iowa continue to work towards that promise, and as I
continue to learn I hope to play my part in that effort. Thanks to everyone at
DRI for their work towards a more inclusive world.
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